Panic Attacks, the State Fair and the Birth of My Death Curiosity

Sometimes, the remembering happens faster than the forgetting.

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It was not your run-of-the-mill trip, as I’d hoped. By early September 2001, I was just weeks into a new job with the New Mexico Pediatric Society and headed to the first of many work trips; this one to Washington DC for a child healthcare conference. Having found a relatively cheap flight, if I went early and stayed later, and since I’d only been to Washington DC once, I figured I would take the opportunity to be a bit of a tourist.

On the way to the airport, the New Mexico State Fair parade almost stymied my plans. There was no passage across Central Ave. and I was at risk of missing my flight; which at the time felt welcome, as I was experiencing one of my first panic attacks. Though I had little to be concerned about, I just didn’t want to go. But, I made it, for better or worse.

I arrived in DC on a Saturday evening with a conference beginning two days later. With those days to myself, I discovered I was exhausted and hardly able to motivate myself to explore that history-filled town. That first day all I could manage was resting in my huge hotel suite, with a separate sitting room even, and scanning the TV options. I landed on a PBS program called “On Dying” with Bill Moyers. I was immediately engrossed, both by my curiosity and by a bit of horror; I’d never really contemplated death quite like this program was asking of me. I binged before binging was a thing.

The next day, navigating the clean easy train system, I surprised myself and decided to visit Arlington Cemetery; it was so stark, sterile even, with its identical and meticulously organized headstones, that the gravity of what I was viewing was squandered on me. Honestly, death felt looming and ever-present.

Then, on Tuesday, September 11, 2001 at 8:50 a.m. I woke up in my hotel near the White House realizing I had only 10 minutes to get my free continental carbs breakfast before heading off to the conference. I rushed downstairs to arrive in the small lobby turned breakfast room. Everyone was gawking at the television, so I joined as we all watched as an airplane hit a tower in New York City on live television. I never made it to the conference, choosing rather to stay in the lobby as “9/11” unfolded on screens in front of me and on the streets just feet away. We watched D.C. office workers flee the area, carrying their shoes in stocking feet; handbags and briefcases getting heavier by the minute. People were tired, weary, worried, ragged and stunned.

Later that evening, in the midst of this tragedy, I met John and his wife, Jen. They needed a room that night as their efforts to get home to their children, and John, a firefighter, to get to work in Manhattan, were fruitless. Everyone believed, naïvely, that customers booked into our rooms the night we’d planned to leave would arrive – but we were actually stuck in D.C. – and the hotel staff wouldn’t allow John and Jen to remain in their room. As for me? Well, I’d arranged to be a tourist after my conference. And that was fortunate, as my over-sized suite was more than large enough for us all. They stayed in the bedroom while I slept on the couch in front of the TV. We stayed up late into the night.

That evening I saw snipers atop buildings nearby while eating Italian at a lone open restaurant; the streets were empty. It was disquietingly quiet.

After much uncertainty – and what must have been minutes, but felt like hours, on a hotel pay phone, where I could use my long distance calling card Mom made sure I always had – I was able to get out of there on an Amtrak. It took an excruciatingly slow, nearly 72 hour train ride from D.C. to Albuquerque to get back to my cozy apartments and kitties. Gratefully, halfway home, I was fortunate to have a layover to visit Uncle Joe for about 30 minutes. He was a striving theater actor in Chicago at the time.

There were a lot of unknowns, the train would randomly pause on the track in the middle of soybean fields and we had no "new" news. I listened to a man describe his harrowing eye-witness story of being in Manhattan that day as darkness descended on the windows of an office he was in when dust and debris blackened the room. He later left his pillow for my use for the remainder of my journey. I witnessed people care for each other and listen closely to each other's stories. I was relieved that we didn’t have iPhones and that I did not have access to much media in those early days. Unlike my parents and partner, whom I think experienced trauma by proxy, I wasn’t subjected to persistent replays of the footage. I did however have another panic attack while attempting to go to the State Fair later that week. Instead, I went home.

John and Jen's presence and friendship in the short 24 hour period we shared will never be forgotten. Instead of feeling alone that day, I felt more connected, by the power and generosity of humanity that a charged event manifests. John returned to NYC after getting Jen safely home to their children and we remain in touch these 22 years later.

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This morning while watering the yard, I heard the distinct buzz of airplanes and looked up to see seven airplanes flying over the house in formation.

It was 8:50 a.m. and I remembered.

You are Unique, So is Your Death; Considerations for Queer and BIPOC Folx

Have you ever stopped to consider the unique needs of queer (2SLBTQI+) and BIPOC friends when it comes to their/our end-of-life planning? Our systems in the US don't protect their rights in the same way as cis-white-heteronormative people; so, everyone must think ahead about end-of-life decisions, make a plan, and make it legal – so we and those we love are protected. 

Given our staid, moth-eaten, lackluster and conservative institutions which continue to wield undue influence and control of the system, it’s unequivocal that BIPOC and queer folx will have unique needs and desires to consider for end-of-life care. Afterall, many queer, trans and BIPOC people live shorter lives because of the ongoing discrimination they face – which doesn’t fade with their deaths.

Among other things, there’s also a need for cultural competency regarding Black bodies' spiritual, cultural and physical care. Clearly, that care will be unique. 

Also there’s a need to affirm care for queer folx in ways stretching from gender identity issues to power of attorney circumstances for spouses/partners. 

Marginalized populations could be in jeopardy after death due to outdated and discriminatory laws. So attentive death care is vital because it can reaffirm that identities will be seen, known and acknowledged and the things people care about, including family (chosen or otherwise) will be protected when the time comes.

When I widen my lens and perspective I’m guided to considering a more unique approach for myself. Funerals can be very pedestrian, scripted and unimaginative, so why not bring to life in it who we were?

Resources

Black Death, Grief, and Cultural Care Academy™

Death Queerious: Everything You Need to Know About Queer Death Care, from this page you can also download a FREE eBook for Queer Folx and Friends.

Death, Disrupted: These Funeral Home Owners Are Changing How We Celebrate the End of Life

Living through the Seas of Grief

Today is my Grandma Fern’s 102nd birthday. Fern died on August 21, 2015. She’d been diagnosed with metastasized ovarian cancer maybe six months prior. Fern lived until the end, fully and with her spit-fire spirit intact. She was still bouncing along the Crook County roads in her manual transmission pick-up truck until months before her death.

The grieving of her has become less like the Pacific Ocean and more like the gentle lapping of the Aegean Sea; not so scary, intense or cold, but more gentle and soft and the water stays clearer now.

I can count on both hands (and maybe my feet!) the number of people I know who are in an acute state of grieving, right now. Facing our and others' mortality illustrates for us the reality that grief is a foundational part of life; I wonder if that’s part of our impulse to evade the topic of death and dying. We know it hurts and we don’t want to feel hurt, it’s uncomfortable, ungrounding and unpredictable. 

For whom/what are you grieving? A person, a fur baby, a relationship, an idea, a worldview? It’s all around. We are not alone. You are not alone. Reach out. Talk. If someone reaches out, listen. 

Resources

I Lost My Dad. These Are The 7 Words I Wish I'd Never Been Told At His Funeral.

https://www.huffpost.com/entry/death-grief-words-dont-say-funeral_n_63c6e8a1e4b0d6724fd142bd

Grief support groups (free) through the NM Grief Center, Center for Hope and Healing (where I volunteer), https://griefnm.org/

The Grief Support Network: https://griefsupportnet.org/

The Good Grief Project: Dedicated to understanding grief as a creative and active process

https://thegoodgriefproject.co.uk/

Reimagine: Reimagining loss, adversity, and mortality into meaning and growth: https://letsreimagine.org/

Books:

Healing After Loss: Daily Meditations for Working Through Grief by Martha W Hickman

The Grieving Brain: The Surprising Science of How We Learn from Love and Loss by Mary-Frances O'Connor

Compassionate Letting Go Part 2

Did you know New Mexico is one of only ten states that allows Medical Aid in Dying (MAiD) – also know as death with dignity or euphemistically as assisted suicide or even euthanasia?

I often hear people who've had an experience like that of my family today (giving our pet the dignity of a gentle death with no further suffering) wonder something along the lines of, "If only we could show such compassion to people the way we do our pets." And, we're not wrong in feeling this dissonance between how we treat animals versus our human loved ones.

This topic is not without its psycho-bioethical concerns, questions and problems. We, in the U.S. particularly, live in a litigious country where physicians feel compelled to "save" lives at all cost, where terminally ill people must “wait out” their disease until it has ravaged them, and where conflict remains around what exactly IS bodily autonomy…among many other things.

I am grateful that I live in a state where we’re exploring this frontier; asking the hard questions and doing what we can to best assist people with a life, and death, of dignity. I’m curious how advancements and expanded inclusions (i.e. dementia) of who qualifies for MAiD will unfold. As a general rule, I support MAiD as well as other systems and procedures in place to help one die with dignity. You can learn more about MAiD at the following links: 

End of Life Options New Mexico provides support and education for advance care planning to ensure people have a clear understanding of their rights and ALL the options available to them in New Mexico, including medical aid in dying, palliative care, hospice, VSED (voluntarily stopping eating and drinking):

https://endoflifeoptionsnm.org/about-us/what-we-do/

✓ Death with Dignity:
https://deathwithdignity.org/news/2023/03/3-29-23-senior-guide/

✓ NPR: After an Alzheimer's diagnosis, her husband asked for help to die with dignity:
https://www.npr.org/sections/health-shots/2022/03/08/1084912553/alzheimers-assisted-suicide-amy-bloom-in-love

✓ The New Yorker, Letting Go: What should medicine do when it can’t save your life? Atul Gawande:

https://www.newyorker.com/magazine/2010/08/02/letting-go-2

It’s OK To Forget: The Future of Dementia Care?

In the final years of my grandfather’s life he’d received a dementia diagnosis which progressed relatively quickly. I reckon the loss of his wife a few years prior, Covid isolation, a few falls and his age (he died at 95) contributed to his rapid changes.

Dementia is a huge topic I hadn’t expected to hit so close to home and caretaking for people with dementia seems to be one of the most challenging and gritty experiences one can undertake. I have huge amounts of respect for anyone working in the field whether it’s in-home care for a family member or as an employee of a memory care facility and all the places in between. I keep my finger on the pulse of current conversations around dementia care and really loved the idea of “dementia villages” as described in this NY Times article.

Dementia villages are intended to “‘emancipate people living with dementia and include them in society’…by offering residents (and their families) humanized care that feels more like home.” Read on and tell me what you think!

As Cases Soar, ‘Dementia Villages’ Look Like the Future of Home Care (NY Times article)

What’s our experience, assumptions and thoughts about this topic? How would you like your care to look should you receive a dementia diagnosis? Have you written that down and told someone?

Compassionate Letting Go: Part 1

August truly is a month for loss and grief. Today's post is short and sweet because tomorrow I'll stand by my Mom as she let's her little pup go over the Rainbow Bridge. You bet I'll speak more to this issue around compassionate end of life, but for now simply say how grateful I am that we can help end the pain and suffering of our furry loves. Here’s Naomi, below, doing her favorite thing these days when she's not sleeping. I've also including a resource for Albuquerque area folks who may want/need at-home hospice and/or euthanasia for their pets.

Death Doulas and Companionship at the End

What do you think about having someone with you to navigate a loved one's death or your own?

I suspect we've suffered a collective moral injury around how we experienced, witnessed, and learned of the deaths of people during Covid. We endured month after month of unremitting headlines about isolation, loneliness and saying goodbye via iPad – with exhausted medical personnel acting as the sole companion to many dying people. Then there were the Zoom funerals and remembrances.

Frankly, I found it horrifying to imagine losing someone this way. Suddenly our radars were pinging with awareness of the act of dying. And the pings reinforced my interest, starting me on this death literacy and education journey.

In the spring of 2022 I began two programs — deep diving into this realm. I earned both an End-Of-Life Doula Professional Certificate from the Larner College of Medicine at University of Vermont and began the Before I Go Method™ Facilitator Training program — focused on helping people put their end of life plans in place. And most importantly, I finalized my will, advanced directives and other end-of-life plans!

As a massage therapist celebrating 10 years in business I felt well-suited to eventually add end-of-life doula work to my resume. I believe in the value and beauty of providing emotional and physical support to the dying and their families, as well as education about the dying process. Death doulas may also include in their offerings preparing people for what's to come (i.e. what dying looks like) and giving guidance about the grieving process.

I love listening to Alua Arthur speak about how she became a death doula. Check out her talk below!

(CLICK) Why thinking about death helps you live a better life

The last two years of self-study on these topics has OPENED my eyes to so many interesting (and challenging) ideas! The funeral industry is a billion dollar industry which will streamline for you the process of handling one of the hardest parts of life: loss. For a pretty penny.

AND, there’s a movement afoot seeking to educate people about all the aspects of death and dying — aspects we have agency to control on our own and for which there’s considerable historical and legal precedent for doing so.

What do you think about having someone with you to navigate a loved one's death or your own?